Hemophilia seminar for patients, caretakers, family members

by The Borneo Post

Hemophilia seminar for patients, caretakers, family members

SANDAKAN: The Physiotherapy Unit of Hospital Duchess of Kent (HDOK) jointly organised a Hemophilia Seminar (Hemophilia Programme: Get Involve; Sharing Knowledge Makes Us Stronger) with the Hemophilia Society of Malaysia at HDOK here, yesterday.

Hemophilia seminar for patients, caretakers, family members

According to Hemophilia Society of Malaysia (Sabah Chapter) President, Alice Ho, the programme was organised to emphasise on education to hemophilia patients, their parents, guardians, and family members, so that they could go through the obstacles in taking care of someone with hemophilia. Hemophilia is a rare disorder in which the patient’s body has difficulty stopping or clotting blood once injured.

“We want to give motivation to the patients, especially those who are still in school, so that they would not become a hemophilia victim. There are studies to prove that hemophilia patients could live normally with correct exercise, active and healthy lifestyle, and avoid contact sports so to reduce the risk of bleeding,” Alice said.

Hemophilia seminar for patients, caretakers, family members

Meanwhile, a Committee Member of the society, Ahmad Hazri Mohamed Aris who is also a Hemophilia patient said that there are 1,800 hemophilia patients recorded in Malaysia, and Sabah has 80 hemophilia patients. “This programme involves all the stake holders, not only the patients. We also involve parents of the patients, their caretaker, as well as medical personnel. Everyone has to be involved to learn the knowledge and information about Hemophilia so that the patients would grow up with minimal injury,” he said.

Ahmad said that he also wants to show the patients that a Hemophilia patient could also live normally and receive education, and have a good career and be successful in life. “Hemophilia is an inherited sickness. There is no cure at the moment, but the patients today are enjoying much better medical facilities and technology to be compared to what we had 40 years ago. These treatments are necessary to ensure that there is no spontaneous bleeding happening inside the patient’s body,” he explained.

Also present at the programme were Director of HDOK Dr. Francis Paul, Head of Rehabilitation Department of HDOK Dr. Richard Lee Chee Houw, Director of Hospital Bukit Padang Malaysia Dr. Ahmad Qabil Khalib, and Head of HDOK Physiotherapy Unit Hafidah Usman.