Hemophilia Society of Malaysia Youth Workshop 2018

by Hazri Aris

2018 marks as a great year for the youths in Hemophilia Society of Malaysia (HSM) as two youth workshop events were successfully organized on 20th – 21st January 2018 (1st edition) and 1st – 2nd December 2018 (2nd edition). As many as 22 participants attended the 1st edition and 14 attended the 2nd edition in these two events which were held at KL Journal Hotel. We are happy to share that three of our Hemophilia brothers from East Malaysia; one from Sarawak and two from Sabah managed to join and participate in these two events.

Hemophilia Society of Malaysia Youth Workshop 2018

Having not held any youth-focused event in the past years, the youth workshop served as a good platform for HSM to re-connect back with the youths who mainly have graduated from ‘Junior Camps’ many years back, and for the youths to meet and catch up.

During the 1st Edition of workshop, Miss Hani Suhaila Ramli from Multimedia University was kind enough to give a session on Youth Leadership to the participants. As someone who is an active volunteer herself in various NGOs, she shared her insight and knowledge on how we can contribute and lead in a cause that is dear to us in the society.

Hemophilia Society of Malaysia Youth Workshop 2018
Hemophilia Society of Malaysia Youth Workshop 2018

We were also grateful to have the former president of HSM, Mr Aris Hashim during the 2nd edition of the workshop. As someone who is very experienced in volunteering and having written a WFH Monologue entitled ‘Recruiting and Retaining Volunteers’ in the past (which everyone can get a copy of it on WFH E-Learning website), he shared with the youths the challenges in volunteering, identifying potential volunteers, and how to retain & reward volunteers, among others. The participants also enjoyed and captivated during his experience sharing on how the HSM was formed in the early 1980s, the challenges it faced and the journey until where the HSM is today.

To ensure we are not just going to be sitting on the comfy chairs and fed with great foods, Mr Helmi Hashim, Head of Physiotherapy from Hospital Ampang was kind enough to be part of the event and shared important tips and knowledge on ‘Safe Exercises for Hemophilia Adults’. Not only the theory part of exercises were shared, he also made us work our muscles in various stretching techniques and exercises (our hamstrings surely felt more loose after that!).

Hemophilia Society of Malaysia Youth Workshop 2018

Youth Myth-Busting session was also one of the highlights of the youth event, as the participants had a healthy discussion with their peers, on issues that affecting their daily life, ranging from disclosure of Hemophilia, relationship with employers and co-workers, relationship with partner, and living healthy lifestyle.

Hemophilia Society of Malaysia Youth Workshop 2018

We would like to thank World Federation of Hemophilia for their support and fund in ensuring the success of these two events. Not forgetting, the wonderful speakers, volunteers and youths for their contribution and participation. We hope that youth agenda will always be among the top focus in HSM, and that more of such events can be organized at other parts of Malaysia.